For SMA warriors, everyday is a milestone.

“Everyday is a milestone”, is about Roche saluting the indomitable spirit of SMA warriors.

“Everyday is a milestone” campaign is our humble attempt to shine light upon real life patient stories and commemorate the development milestones they achieve everyday. These small yet significant milestones are worth celebrating as they bring a ray of hope into the lives of SMA patients and their families. Through this campaign, we aim to get such patient voices heard to those stakeholders who matter the most, be it policy makers, medical practitioners or the media.

Life for children living with SMA is not easy. Everyday is a new challenge for them and everyday they fight SMA fearlessly to achieve a new milestone in their lives. For other children, kicking a football or climbing a step or holding their own glass of water may not be a big achievement, but for children with SMA, these little milestones keep them motivated to lead a life as near to normal as possible.

The following stories of resilience from patients featured in “Everyday is a milestone” will touch your hearts!

Aarav:

Aarav, an 11 year old boy is a brilliant student with a passion in coding, he was diagnosed with Type2 SMA when he was 16 months old. Aarav has already won numerous gold medals and accolades in Math, Science, and English Olympiads. He is also a gifted orator, eagerly waiting to make his debut in his school's annual function. In addition, he has a YouTube channel of his own, where he shares his passions, and his coding skills have already led him to develop several impressive mobile app prototypes.

Revati:

Revati, a 5 year old girl from Pune is a massive football fan. With the right treatment and care, she has made incredible progress taking steps, kicking footballs and climbing stairs like any other kid her age. Her parents. Lalit and Poonam, wake up every day knowing that their child is crossing little milestones every day.

Vriddhi Vijesh:

Vriddhi Vijesh is a 2 years old girl from Kerala who was diagnosed with SMA Type 1 patient when she was around 6 months old. She was enrolled in Roche’s compassionate use program and since then she has seen considerable improvement with Evrysdi and regular physiotherapy. She can now turn on her sides without help, lift her head and even sit up without support.