About SMAMyWay

SMAMyWay is a community to celebrate each SMA patient's individuality.

Every person living with SMA is unique, faces unique challenges and has their own individual life aspirations to fulfill. However, by sharing lived experiences, SMA patients can collaborate, feel supported and harbor a community spirit. That’s the intention behind creating the SMAMyWay digital platform.

SMAMyWay is envisioned to be a resource to help people living with SMA, parents and caregivers to live independent lives and learn from each other as a community. Here one will find real life experiences and stories from people who are impacted by SMA. There’s even information being shared by leading medical experts on the disease itself.

As a community, we are dedicated to our mission to provide support and care to SMA patients and their families in India. We are doing everything we can to transform lives and ensure that every individual gets a chance to live a healthy life. This platform is a ray of hope for people living with SMA, and a reminder that no one has to face this alone!